Blogging For Lila

by Sarah March 16, 2011

 

Hi everyone…today I would like to introduce you to a very special friend of mine, Lila. Lila is the daughter of my friend Maria and her husband Matt. Maria and I worked in Chicago for a large interiors firm and later both moved west to the Reno/Tahoe area and we have known each other for about 15 years. Maria is also, the owner of emkadesigns a local interior architecture and design firm. A few years after moving west, Matt and Maria gave birth to a beautiful girl that they named Lila. Lila has cerebral palsy and Maria and Matt are hoping to raise awareness of her disease, which is why I bring you their story today.

“Lila is a beautiful 4-year-old girl, who lives with cerebral palsy and hasn’t been given a fair chance at life.  We, Lila’s parents, are on a quest to give her that fair chance by allowing her to have a stem cell treatment this coming summer.

Since birth, Lila’s cerebellum has been growing at a slower rate than the rest of her brain.  The cerebellum controls a multitude of things that we all take for granted (i.e. balance, coordination, emotion, muscle tone, muscle control).  The majority of Lila’s issues are physical, as she walks with a walker, has no balance or coordination, and has low muscle tone.

Stem cell treatments with CP have been proven to help the child with speech annunciation, balance, strength, and increased levels of cognitive abilities.   In every child, the levels of these changes differ, however they have all been seen time and time again.  If these changes are all we see in Lila, this will certainly change her life forever, and you will have helped!

All of that being said, she is a very happy little girl who seems to shine a light on everyone she comes across.  There are people in our community that know and love her, whom we don’t even know!  I seem to believe it is her smile that captures everyone’s hearts, as she has ours.   What a special little girl, one that has taught us how to love unconditionally, to not take the little things for granted, and to know that each little milestone is truly a really big milestone!

We love her so much and just want to give her a chance for a more “normal” life.  For Lila that means that she may have the chance to have a college education, career, marriage and a family.  Our goal is to raise $20,000 by mid-June, however we hope to surpass that goal give Lila have a second treatment after one year, which is recommended by the doctors and could benefit her tremendously.  We hope that you all will join us on our journey, and embrace our little girl just as we have!” (as told by Maria)

To read more about Lila’s journey you can connect to mommyyouknowwhat? from my sidebar or by clicking on the link. By bringing this story to you today, it is my hope  to help Maria and Matt bring awareness to their daughters disease and help them in their journey to receive stem cell therapy for their child.

One way I have offered to do this, is by sponsoring a Blog Hop in honor of Lila. The idea of the blog hop came about during discussion with a special group of artists called the Creative Coconuts. During the month of April, if you have a blog, you can sign up to participate in our blog hop, Blogging for Lila….As you can see from the smiles on this child’s face our tag line for the hop will be: “blogging for hope, blogging for awareness, blogging for smiles

Even if you don’t have a blog, you can follow along during the month and be introduced to some amazing artists. Artists that feel it is important to give back…Just click on the Blogging for Lila tab at the top of the page to see who might be joining in that day….

If you would like to participate:

1. pick a date in the month of April that you would like to write your post. (begininng Monday, April 4 and ending Friday, April 29.

Just click on the link below and place your name and link to your blog on a calendar date. Feel free to blog on the same day as someone else if you wish.

Blogging For Lila Calendar (click on the month of April at the bottom of the calendar and then add your name and blog link to the calendar)

I will also add your name to the Blogging for Lila list that has been created under the Blogging for Lila link at the top of the blog.

2. share your thoughts on giving back-who you are and why  you are blogging for Lila-share your work, write a post, what ever your creativity leads you towards

3. introduce the blogger for the next day with a link to their site

4. Link to Mommy, you know what?

5. Link back to what is design?

Most importantly, thank you so much for participating in this wonderful blog hop and thank you for bringing awareness to this therapy and research. (Please note: all photography of Lila has been provided by Maria B.)

Have a great Wednesday everyone…

Feel free to grab a blog button as well: (link it to: www.red-line-design.com/blog)

 

 




Sarah
Sarah

Author


Leave a comment


Also in Blog

Into the Deep Group Show

by Sarah February 15, 2017

For the past 10 weeks I have been honored to work along side Catherine Just and 10 amazing women photographers to create a body of work in a master photography class called Into the Deep. I have known Catherine for many years but this was only the second time I have taken a course from […]
My Immigration Story

by Sarah February 09, 2017

(me – 4th grade – Fall, 1977 – Australia) I have lived in the United States for 40 years. I am a green card holder and in process of becoming a US citizen. Most people do not know this about me. On the surface I look and speak like any other American. I am married […]
September Creativity Tips – Starting a Personal Project

by Sarah September 29, 2016

“Creativity is a habit, and the best creativity is the result of good work habits” – Twyla Tharp Back in June, I asked you to follow along with a new book I was reading called The Wander Society. I have read about 3/4 of the book. In it, Keri Smith discusses Walt Whitman and the […]